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19th AnnualFuzzy Buzzy Golf Tournament

Dear Friends:

The 19th annual Fuzzy Buzzy charity golf tournament, supporting FARA, (Friedreich’s Ataxia Research Alliance) is rapidly approaching. This year the tournament will be held on September 11, 2022 at the Windham Country Club. We are looking forward to welcoming back the numerous individuals and family members affected with FA, showing their support. We are ready for a great day of golf, numerous raffles and silent auction items, wrapping up the day with a delicious BBQ. When I was diagnosed in 1992 there was very little information or support for people and families dealing with FA. FARA was not founded until 1998! Until then there was no hope for a promising future. 

The Fuzzy Buzzy, along with many other fundraising events, is directly helping find a cure. There have been major scientific breakthroughs in the fight against FA.

In November 2022 Reata pharmaceutical will have the first FDA approved drug showing promising results to slow the disease progression! 

Friedreich's ataxia (FRDA) is a rare, genetic, neurodegenerative, multi-system, life shortening disorder. Five thousand people in the United States have FA. Onset of symptoms is usually between the ages of 5 and 15, sometimes even earlier and sometimes significantly later.

Dealing with FA not only affects me but my family and friends. Although I am confined to a wheelchair I am not going to take this sitting down. I am fighting everyday living independently, going to the gym, eating healthy, even recently getting married! I do this because when the cure comes, I will be ready.

To accelerate the research and success of this event, my family and I are looking for donations of any kind. Your consideration is much appreciated.

Thank you for caring,

Erin O'Neil


Donations of any kind can be sent to:

               Eric Jamieson

               7 Marshall Rd

               Stoneham, MA 02180

Donate Online using PayPal!

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FARA is a 501 (C)(3) tax-exempt organization – all contributions are fully tax-deductible.

TAX ID#52-2122720

For more information about FARA visit their website at

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